We Are Dedicated to Spreading Awareness About Sanfilippo Syndrome Through Levi's Inspiring Story
Why Sanfilippo Syndrome Awareness Matters
Sanfilippo is a rare genetic disorder. At this time, there is NO TREATMENT or NO CURE! Causes my body and brain to decline. Causes problems with my joints, heart, respiratory system, and speech. Will lose the ability to walk & talk as the disease progresses. Doctors say I wouldn't live into my teens, but now I am 26 but living on borrowed time! I NEED A CURE!
Join us in finding a cure
Our mission in life is to spread awareness by sharing Levi's story as he battles this debilitating disease and to spread awareness about Sanfilippo Syndrome, to help find a cure for all the children and young adults who suffer from this devastating disease. We are not giving up this fight for Levi and we hope you too will help continue to fight alongside us until we find a treatment or better yet a cure!
